• SUBSCRIBE TO SHIPS IN SCALE TODAY!

    The beloved Ships in Scale Magazine is back and charting a new course for 2026!
    Discover new skills, new techniques, and new inspirations in every issue.

    NOTE THAT OUR NEXT ISSUE WILL BE MARCH/APRIL 2026
  • Win a Free Custom Engraved Brass Coin!!!
    As a way to introduce our brass coins to the community, we will raffle off a free coin during the month of August. Follow link ABOVE for instructions for entering.

ZEEHAEN 1639, 1:37.5, Dutch fluit from Dutch Explorer Abel J. Tasman by Marcus

Ab Hoving said:
That is a terrible example of bad luck Marcus. I'm really sorry for you and your friends and family. I hope you can go on modelbuilding as long as possible, because I know from experience that tget your book on here is a lot of comfort in it. Never give up hope.
I wish you all the best.
Ab
Click to expand...
Thank you @Ab Hoving for giving me hope. Due to some difficulties working with wood, I have started with very simple card models. Folding paper takes a lot of effort, but it does work. :) I have to keep my fingers moving and bending as long as possible. I did get your latest book on modelling with card. Excellent book, as always.

Marcus
 
Last edited:
The ALS has accelerated in the last 2 weeks and my left hand has severely weakened. I can still type, but slower.
I tried to sand a mast today but I just don't have the strength to put it in a vise and then work on it. I have to be practical and realize that my ship modelling days are over ...... :-( :-( :-( :-( :-(
I will try some other stuff with wood but I think this is it. Next couple of days I will try with card and see if it is easier. We will see.

Marcus
 
flying_dutchman2 said:
The ALS has accelerated in the last 2 weeks and my left hand has severely weakened. I can still type, but slower.
I tried to sand a mast today but I just don't have the strength to put it in a vise and then work on it. I have to be practical and realize that my ship modelling days are over ...... :-( :-( :-( :-( :-(
I will try some other stuff with wood but I think this is it. Next couple of days I will try with card and see if it is easier. We will see.

Marcus
Click to expand...
good luck my friend, don't give up, this is the right spirit
I will pray for your health
 
Hi there,
It has been 1 year and 2 months since my official ALS diagnosis and I am still around.
I use all types of technology to do things
Writing this post on my laptop is done with the on-screen keyboard that is part of Windows 11 and a "head mouse" which is a dot on my glasses and a receiver light on top of the laptop screen with software called "Dwell Clicker". With all that I can surf the NET, play games on STEAM. etc.
Click to expand...
I can no longer talk so I use a "TobiiDynavox" to communicate. We programmed my voice instead of the computer voice. The program on this little computer is called Communicator.
I can no longer walk, and my left arm and hand no longer work. My right shoulder works and I can wiggle my right-hand fingers. To get those fingers on the joystick that controls the wheelchair, I use muscles I never thought I had and they stand out as I lose the ones that no longer work.

This gadget gets me from bed to wheelchair Hoyer lift and shower chair and so on.
To read Ships in Scale I use this Mouth Stylus and I do very difficult jigsaw puzzles.
This is my wheelchair Quantum Edge 4
Sold my car and we bought a very fancy hospital bed.
We rent a Toyota or KIA van especially made to transport wheelchairs to go to doctors and outings.

Marcus
 
Hello Marcus,
It hurts to read about your condition and at the same time I'm glad you are still around and capable to communicate. Hard times man.
I cannot say much more than that I wish you all what is good and that I'm glad we shared the same hobby. Pity you could not finish the fluit.
All the best Marcus!
Ab
 
I’m glad to hear from you after so long. I knew things weren’t going well for you, but now that I’m reading this and realizing how terrible your condition is in this moment, I’m really shocked. And just as Ab says, it’s a pity that you won’t be able to finish your Fluit. I’ve always enjoyed your building style and the love you put in it. It’s nice to know you’re still actively reading the forum. Wishing you all the best, and to Barbara as well.
 
Marcus, I just arrived on this forum and still finding my way. Terrible to hear your progress in this stage of your life. I only can wish you the best.... Somewhere here I read to keep hope and that is I think a good advice, how difficult it must be for you.

Hope you will be around here for a long time... wish you much strength!
 
flying_dutchman2 said:
Hi there,
It has been 1 year and 2 months since my official ALS diagnosis and I am still around.
I use all types of technology to do things

I can no longer talk so I use a "TobiiDynavox" to communicate. We programmed my voice instead of the computer voice. The program on this little computer is called Communicator.
I can no longer walk, and my left arm and hand no longer work. My right shoulder works and I can wiggle my right-hand fingers. To get those fingers on the joystick that controls the wheelchair, I use muscles I never thought I had and they stand out as I lose the ones that no longer work.

This gadget gets me from bed to wheelchair Hoyer lift and shower chair and so on.
To read Ships in Scale I use this Mouth Stylus and I do very difficult jigsaw puzzles.
This is my wheelchair Quantum Edge 4
Sold my car and we bought a very fancy hospital bed.
We rent a Toyota or KIA van especially made to transport wheelchairs to go to doctors and outings.

Marcus
Click to expand...
Dear Marcus
My heart goes out to you
on the one hand the illness is taking its toll on your physical body, at the same time I find your spirit struggling mightily.
I wish you all the best in the world that you could ask for.
Keep sharing with us, and from all over the world we send you love from friends for the crazy hobby and the unique person that you are
 
You must log in or register to reply here.
Back
Top